“It is very cruel not to be able to receive treatment for financial reasons”

Rubén Ávila Calvo was diagnosed with SMA at the age of four.

“It is very cruel not to be able to receive treatment for financial reasons”

Rubén Ávila Calvo was diagnosed with SMA at the age of four. Of the three types of this degenerative disease that children suffer from, theirs is the mildest, but it is nonetheless very serious. During the first years this young man was able to lead a relatively normal life. Until I was 15. One day, when going to get on the school bus, f


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